Clear skies. Low around 65F. Winds light and variable..
Clear skies. Low around 65F. Winds light and variable.
Brynn Croot, the daughter of Grand Island natives, has a rare genetic disorder called hypomyelinating leukodystrophy.
A portion of Dreisbach's sales in September will go to the Division of Genetics and Dysmorphology at Rady Children's Hospital in San Diego. Those who scan the code will also have a chance to help the family of 5-year-old Brynn Croot.
Brynn Croot, the daughter of Grand Island natives, has a rare genetic disorder called hypomyelinating leukodystrophy.
Brynn Croot, the daughter of Grand Island natives, has a rare genetic disorder called hypomyelinating leukodystrophy.
Sales of Driesbach’s salad dressings and frozen au gratin potatoes will help a 5-year-old girl who has a rare genetic disorder and others with the same condition.
Brynn Croot lives in Temecula, California, with her parents, Dalton and Cassidy Croot, who are Grand Island natives.
Brynn has a form of hypomyelating leukodystrophy, which leaves her physically disabled. She doesn’t sit, stand, talk or walk. She eats through a feeding tube.
Her case is one of only about 20 currently discovered in the world.
Brynn Croot, the daughter of Grand Island natives, has a rare genetic disorder called hypomyelinating leukodystrophy.
“Leukodystrophies are a group of rare, genetic disorders that affect the white matter of the brain. If left untreated, it will progress, causing more destruction to the white matter and worsening symptoms,” says a fundraising card.
Brynn’s parents both graduated from Northwest High School in 2012. Dalton, 29, is in the Navy. Cassidy, 28, has a photography business.
Dalton’s stepmother is Angela Dowd of Boelus, who owns Dreisbach’s Steakhouse Foods. Grand Island’s well-known Dreisbach’s Steakhouse closed in 2002.
But Dowd still produces eight types of salad dressings and au gratin potatoes under the Dreisbach’s name.
A sticker with a QR code has been attached to those products. People who scan the code will learn more about Brynn, have an opportunity to donate to the family and buy a T-shirt. You may also visit www.blueforbrynn.com or www.dreisbachsfood.com.
A portion of Dreisbach's sales in September will go to the Division of Genetics and Dysmorphology at Rady Children's Hospital in San Diego. Those who scan the code will also have a chance to help the family of 5-year-old Brynn Croot.
A portion of Dreisbach’s sales in September will go to the Division of Genetics and Dysmorphology at Rady Children’s Hospital in San Diego.
According to a story written by her mother, Brynn has had multiple hip surgeries, including a major surgery in July 2021.
Brynn “has been through so much in her five years,” her mother wrote. “She’s been hospitalized many times and handles it like a true champ. She is a happy, social girl who loves princesses and sparkles like other children her age. She loves school and her friends. Brynn shows everyone how smart she is by learning new things daily and has her own way of communicating with her family and friends. Brynn needs a lot of medical attention, equipment and therapies to help her live her happiest and best life.”
In an interview, Cassidy said her daughter likes being around people, kids and animals. She also likes being outdoors. She just started dance class last week.
The family would like to bring awareness to leukodystrophy, and hopefully help find a cure. September is Leukodystrophy Awareness Month.
Cassidy is the daughter of Corey and Joey Keezer. Joey, a pediatric nurse, works in California and lives with the Croots to help take care of Brynn. Cassidy’s stepmother is Wendy Keezer.
Angela Dowd produces eight types of salad dressing — blue cheese being the most popular — and the au gratin potatoes in Grand Island. She leases space at the Chocolate Bar.
The products are sold at many grocery stores, including Super Saver and Hy-Vee in Grand Island. Dowd also supplies the Chocolate Bar with fresh au gratin potatoes.
Dreisbach’s was started in 1932 by Ferd Dreisbach. Angela’s grandfather, Frank Dowd, bought the place in 1944. The restaurant was later owned by Angela’s father, Pat, and aunt, Mary Jo Dowd. Angela’s mother, Suzanne, lives in Boelus.
LINCOLN, NEB. - 08/07/2022 - Arianna points to a rocket pop on a ice cream truck at Holmes Lake Park, Sunday, Aug. 7, 2022. NOAH RIFFE, Journal Star
Parade watchers race to collect candy thrown during the Wilber Czech Festival on Saturday.
Grammy award winning American blues singer Bonnie Raitt performs at the Pinewood Bowl on Tuesday.
Saltdogs third baseman Ryan Long (left) beats the tag as Gary SouthShore second baseman Michael Woodworth drops the ball on Monday at Haymarket Park.
Fair attendees ride a motorcycle-themed merry-go-round during the Lancaster County Super Fair on Sunday.
A 26-year-old man told Lincoln Police he was "beaten, burned with a blowtorch and branded" with the word "thief" after he was ambushed by two men amid a drug deal at a warehouse near Interstate 80 and 56th Street, Investigator Christopher Schamber said in an arrest affidavit.
Layla Karee (left) comforts Shireen Jardo Alhanto who begins to sob while speaking of her family both missing and deceased during a ceremony to commemorate the eighth anniversary of the Yazidi genocide on Wednesday in Malcolm. Alhanto lost two brothers, and 15 members of her family are still missing.
Nebraska quarterback Casey Thompson claps hands during practice Monday at Hawks Championship Center.
Nebraska Wesleyan athletic training student Sabrina Ochterbeck is placed in an ice bath by athletic trainers (from left) Terry Adair of Bryan Health, Tyler Rediger of Lincoln Southeast, Bryan Butler of Lincoln Northeast and Charity Rainey of Lincoln High on Friday. With fall practice set to begin Monday, athletic trainers reviewed how to prevent and treat heat illnesses.
Artist Toan Vuong is shown on his front porch with his compositions created using date stamps. Vuong will participate in Porch-Art-Palooza, a sprawling art sale on 30 front porches in the Near South, Everett and South Salt Creek neighborhoods, on Sunday.
Luca Yeager slams down his mug after downing Kool-Aid in a quickest drinking contest, during the Kool-Aid Days Festival, at the Adams County Fair grounds on Saturday, Aug. 20, 2022, in Hastings. Thousands of “kids” of all ages gather to celebrate the invention of Kool-Aid®, Nebraska’s Official Soft Drink, by Edwin Perkins in 1927.
Lincoln Northwest High School students, including Noah Foreman (from right), Brohdy Ferguson and Delaney Ahl check out the cafeteria area Monday, Aug. 15, 2022.
Nebraska volleyball head coach John Cook observes the team's first practice of the season Tuesday, Aug. 9, 2022, at the Devaney Sports Center.
Drew Carlson celebrates after winning a competition during the Cornhusker Marching Band Exhibition at Memorial Stadium, Friday, Aug. 19, 2022.
Alex Kuepper rests in the shade after finishing the 150-mile race during the Gravel Worlds on Saturday, Aug. 20, 2022, in Lincoln.
Nebraska's Red team reacts after scoring a point during the Red-White Scrimmage Saturday, Aug. 20, 2022, at the Devaney Sports Center.
Workers remove the last few tiles of the Pershing Center mural, Friday, Aug. 12, 2022. The tiles will be stored until money is raised to restore and reinstall the 763,000-tile mural at another location.
Breckyn Erks observes a Lincoln Pius X football practice while hanging upside-down Tuesday, Aug. 16, 2022, at Pius X High School.
Work to demolish the home at 2636 Woodscrest Ave. began in earnest on Thursday, Aug. 11, 2022, to make way for a new home, which owners say will fit into the character of the historic neighborhood.
Anti-abortion demonstrators pray outside the Planned Parenthood clinic near 48th Street and Old Cheney Road on Tuesday, Aug. 9, 2022. A Planned Parenthood official said protest activity outside the clinic has surged since the Supreme Court ruling to overturn Roe v. Wade.
Tramesha Cruse poses for a photo at her restaurant, Lila Mae's Southern Kitchen and Lounge, Wednesday, Aug. 10, 2022.
A dog swims in the water during Dog Splash at Star City Shores sponsored by the Lincoln Parks Foundation and the Greater Lincoln Obedience Club on Sunday, Aug. 14, 2022.
A kayaker paddles on Holmes Lake on Wednesday, Aug. 17, 2022.
Nebraska's Jordan Zade (37) walks off the field after San Diego State scored in the final minute of the game, Thursday, Aug. 18, 2022, at Hibner Stadium.
CeCe Mlady (left), 4, and her sister Grace Mlady, 10, cheer as they try to get the attention of Husker players throwing gifts to the stand before a soccer game between Nebraska and San Diego State on Thursday, Aug. 18, 2022, at Hibner Stadium.
Lincoln Northeast's Micah Quirie kicks a field goal as teammate Trevor Vocasek holds the ball during practice Thursday, Aug. 18, 2022.
Lincoln Lutheran players gather around the hydration station during practice Wednesday, Aug. 17, 2022, at Lincoln Lutheran High School.
The Nebraska State Capitol on Wednesday, {monthameap} 24, 2022, in Lincoln, NE. KENNETH FERRIERA, Journal Star
WarHorse Gaming will open the state's first licensed casino at Lincoln Race Course in September. Crews continue work to convert the horse race simulcasting space to a temporary gaming floor with 433 slot machines.
LINCOLN, NEB. - 08/26/2022 - Marcee Metzger of Voices of Hope poses for a portrait at the group's office, Friday, Aug. 26, 2022. NOAH RIFFE, Journal Star
Nebraska's Hayden Kubik (top, first right) celebrates with her team after scoring the match-ending point of a 3-0 win against Texas A&M Corpus-Christi on Friday at the Devaney Sports Center.
Mike Comstock picks up his daughter, Brooklynn Comstock, at the end of the first day of school at Robinson Elementary on Monday. The new school in northeast Lincoln opened two weeks late because of construction issues.
Friday's game between Lincoln Northwest and Ralston is seen through temporary fencing at Union Bank Stadium. It was the inaugural game at the stadium.
Kearney's Sawyer Schilke carries the ball as he narrowly avoids a tackle by Lincoln East's Connor Shelton on Thursday at Seacrest Field.
The family of Hulda Roper, including step-grandson Craig Roper (from left) and stepson Charlie Roper, talk with Lincoln Police Chief Teresa Ewins and Cedars president and CEO Jim Blue as the youth service organization names its conference room after Hulda Roper, the city's first female police officer.
Sen. Ben Sasse (from left), Rep. Don Bacon, Rep. Adrian Smith and Rep. Mike Flood attend the annual federal legislative summit on Thursday at Strategic Air Command & Aerospace Museum.
Mike Meyerle (left) and Steph Meyerle of Beatrice watch Nebraska play Northwestern on Saturday at McKinney's Irish Pub.
Wahoo coach Trina Christen hugs Jaiden Swanson after she threw the final out, winning the game against Beatrice in overtime, 13-12, at Hannibal Park on Tuesday, {monthameap} 30, 2022, in Beatrice, NE. KENNETH FERRIERA, Journal Star
Lincoln Pius X players run through a banner before taking on Scottsbluff on Friday at Aldrich Field.
Lincoln East's Kooper Barnes dances with her teammates before the Spartans took on Norris in the LPS Classic on Saturday at Doris Bair Softball Complex.
Lincoln Southeast's Gunnar Gottula flips his hair back after taking off his helmet in the fourth quarter against Elkhorn South at Seacrest Field on Friday at Seacrest Field.
Lincoln Lutheran's Elecea Saathoff (3) tips the ball past Waverly defenders Thursday at Lincoln Lutheran High School.
Originally published on theindependent.com, part of the TownNews Content Exchange.
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